Hello there! It’s been a while since we caught up, and there have been both positive and negative health experiences lately. Let’s dive in, starting with the good news: A recent MRI indicated that the tumor in my spine hasn’t significantly grown, which is a relief as it’s unlikely to be malignant. This news lightened my load and significantly reduced my stress levels.

However, the MRI also brought some unfortunate developments to light. Not only has my back shown no progress in the last 11 months, but they’ve also discovered retrolisthesis in my mid-back. This means a part of my vertebrae has shifted slightly, causing a mild dislocation. Regrettably, no treatment has been provided for this, resulting in new back pain.

Back in September 2022, I was informed of a 9-18 month wait to see an orthopedic surgeon, yet I haven’t received any updates. So, I’m still awaiting that consultation to discuss options for treating my pain. While I initially wanted to avoid surgery, I’m now considering it as a potential relief from the excruciating pain. With two herniated disks, nerve compression, annular tears, a benign tumor, and retrolisthesis, I’m desperate for solutions.

As for my suspected POTS symptoms, I’ve yet to find effective treatments, prompting a return to cardiology to uncover any overlooked factors. Unfortunately, the healthcare system’s response has been slow, leaving me without updates.

Additionally, I’m revisiting rheumatology to reevaluate signs of rheumatoid arthritis, as previous assessments deemed it too early to tell. This could potentially provide insight into my joint pain and alleviate some symptoms.

My prolactin, thyroid, and cortisol levels remain elevated, but my doctor hasn’t pursued the cause. This is increasingly frustrating, as appointment time is limited, making it difficult to advocate for myself on all fronts. If anyone has suggestions for questions or steps to take, please share. I’m feeling lost.

To manage daily flare-ups, I’ve assembled an emergency medical bag with medications and strategies, which brings some relief.

On the bright side, there’s progress with my MCAS. Xolair injections have notably reduced my reactions, although not entirely eliminating them. I’m excited to learn self-injection soon, as it would spare me the additional stress of clinic visits.

The journey to advocate for myself and seek answers is taxing, but I’m determined. If you know of reputable specialists in the Ottawa area, please pass along their information.

As always, I hope you’re doing well and thriving. Keep living beyond limits.

Have any thoughts, questions, or concerns? Feel free to share below!